Get Undiagnosed Diseases Network Paper Application Process 2022-2025

Applying to the Undiagnosed Diseases Network (UDN) is an important step for individuals seeking a diagnosis for rare and complex conditions. This guide provides a clear and comprehensive outline to assist users in completing the paper application process online.

Follow the steps to successfully complete your application.

1. Press the ‘Get Form’ button to obtain the application form and open it in your preferred editing platform.
2. Begin with the cover page. Indicate whether you are the applicant or a legal guardian by selecting ‘Yes’ or ‘No.’ Provide your name and your relationship to the applicant.
3. Carefully read the consent form provided. Confirm your understanding by checking the acknowledgement box.
4. Fill out the applicant contact information section, which includes the applicant's email address, name, address, phone number, and primary language.
5. Complete the applicant information section, including date of birth, sex assigned at birth, and gender identity. Select from the provided options.
6. Indicate the racial and ethnic background of the applicant by checking the appropriate boxes.
7. Identify the category of the applicant's primary symptoms by selecting the option that best describes the condition.
8. Detail when the applicant's symptoms first appeared and provide information regarding any family members with similar symptoms.
9. Answer questions about environmental exposures that may have contributed to the condition.
10. Indicate if the applicant has previously participated in other clinical trials or if they have been seen by any UDN clinical sites.
11. Provide the health care provider contact information for updates regarding the application.
12. Attach the required study recommendation letter from a licensed health care provider, ensuring it is on official letterhead and signed.
13. If desired, include optional attachments, such as a narrative summary or photos that may assist in the understanding of the applicant's condition.
14. Review all sections for completeness and accuracy before saving the changes, downloading, printing, or sharing the final application.

Complete your Undiagnosed Diseases Network application online today for the best opportunity to receive the support you need.